So we have been waiting since Monday after the MRI for the results. At Children's they told us that our doctor should call us by Wednesday to let us know what they saw and what our next move would be. By 1 PM on Wednesday, I couldn't take it anymore, so I called the doctor and spoke to the nurse who said the results weren't in yet and the office closed at 5 PM, so if I was going to hear anything, it would be before then. We waited and waited, but nothing Wednesday. Unfortunately, Hadley's doctor is out of the office on Thursdays, so that meant we wouldn't hear back until Friday at the soonest. I waited and waited with my phone next to me at all times this morning until about 2:45 PM when again, I couldn't wait any longer and called them myself. This time, I talked directly to the doctor and when he started the conversation with, "Good news, very good news..." I couldn't help but tear up and mentally thank God.
The doctor said that the MRI revealed Hadley has a vascular malformation under her skin. He likened it to the hemangioma birthmark that developed on her back when she was about 10 days old and should disappear when she is school aged. The only difference between the two is that one is on the outside of her skin and the other is underneath it. He suggested we take her down to Cincinnati Children's Hospital to see a vascular specialist about what to do next, whether to inject it with medicine to shrink it faster or what. I told him that we have noticed it has shrunken since he first saw it and he was excited to hear that, saying that instead of going to Cincinnati, we could just wait and see if it completely disappears on its own. He said he would check it out at her 2 year old well check in August unless it started to grow again, in which case we would head down to Cincinnati after all. Overall, he said we could rest assured that the MRI revealed good things.
It is so terrifying to think that your child could have some kind of life-threatening illness or disease and as much as I have tried to put it out of my mind, fear of losing her still creeps in and hits me out of nowhere sometimes. It has made me appreciate my Hadley so much more and cherish my time with her. I feel like I've loved her better in the last month and a half than I loved her before. We are just so thankful to God for protecting her. God is so good!
1 comment:
I am so glad you received good news! It is always so hard as a parent during these types of situations. We were so relieved when Stella's little hole in her heart closed up last year. So many little scares we go through as parents!
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